CHEYENNE'S
STORY
www.CheyenneAshleyWillis.com
This site is managed by Cheyenne Willis and her dad, Dustin Willis.
Cheyenne's Journal
March 16, 2010
Cheyenne is able to lay on her back now. She says her arm is not as tight. She is able to control her muscles a little better. She is going up to UCSF on Wednesday to get her stitches out and and they will adjust her stimulators up to 2 and a half volts.
-Dustin
March 22, 2010
Cheyenne is talking with her normal voice and she continues to show great improvement in her movement.
Thank you everyone for your emails, prayers, thoughts and donations for Cheyenne.
-Dustin
April 17, 2010
Cheyenne is so happy that Glee is back! She loves this show and sings the songs over and over. Chey is doing very well and has a check-up at UCSF next week.
Chey met her new friend Sarah that also has Dystonia. We have posted their pictures together.
Thank you for your thoughts, prayers and being there for us during this challenge. We are making great progress.
May 7, 2010
Thank you to everyone for their support and attending the Fashion Show at Robert Hall Winery. It was a huge success and my family was touched and humbled by the support from everyone.
Chey is doing very well, her voice is back to almost 100% and she is dreaming of swimming, becoming a Veterinarian or a School Teacher.
She is looking forward to her benefit on June 4th and seeing all of her family and friends.
-Dustin
May 22, 2010
Cheyenne is so looking forward to seeing everyone at her June 4th Benefit. She is showing great progress and in physical therapy to help with her movement.
We still have tickets available for the June 4th Benefit at Denner Vineyards in Paso Robles. Hope to see you there. Her Mamaw is taking the train from Orange County and can't wait to be with her!
Thank you for all of your prayers, notes, cards and calls. We are touched by the amount of support that the community has shown for Cheyenne.
Many Thanks!
Dustin, Cheyenne and Chance
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June 2010
Thank you to everyone for their generosity and
attending Cheyenne's Benefit. Cheyenne smiled all night and loved every moment. We all did!
We will continue to keep you posted on
Cheyenne's progress with Dystonia.
Again, thank you so much to Denner Vineyards and everyone that contributed to such a wonderful and touching evening.
We are truly blessed.
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July 2010
Cheyenne is enjoying her summer and getting ready to start middle school soon. She just spent a week with her Uncle Tony in Orange County. Chey and Chance both had a great time with their Uncle Tony, Kate and cousins.
Chey is making great progress and her medical team and parents are looking at the next steps to improve her walking skills.
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August 2010
Cheyenne spent a week at her Uncle Tony's and Kate's. She went swimming at her Mamaw's house and visited with her cousins. She spent a week in Las Vegas with her grandmother and grandfather Mary and Russ. She camped at the lake and is getting ready for middle school.
She is becoming more flexible in her physical therapy. She will for sure have surgery in the 1st semester of school.
Most importantly, she got a new chocolate lab puppy named Coco.
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September 2010
Cheyenne is in physical therapy learning to walk again. She has been making great progress and is busy in school making friends.
Her batteries were adjusted from 3 volts to 3.2 volts. She is down from 45mg of Artane to 30mg a day. Her Orthopedic wants to cast both feet. If that doesn't work then botox and braces. And if that fails then surgery.
Cheyenne continues to improve and become more and more flexible and has a very positive spirit!Thank you for all of your emails and phone calls as this keeps us going day by day.
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January 2011
Cheyenne will be visiting her doctor for Botox injections to her legs. This will loosen up her feet so they then can do the casting to help her correct her feet to walk. Family is working with her getting up on her crutches and taking a few steps. She is enjoying her art and being creative. She has a new cat at our new home called NoMeGato! Making lots of friends at school and had her first sleepover at her friends birthday party.
Happy New Year everyone!!
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April 2011
Cheyenne will have her leg and foot surgery on April 11th at UCSF in San Francisco. Cheyenne is doing very well and making lots of new friends at school. She was recently in a talent show singing with two of her friends. She loves to sing and loves Glee. Cheyenne looked beautiful at her Dad's and Jenny's wedding.......full of smiles and happiness. She is looking forward to having another little brother soon.
Happy Spring!
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May 2011
Cheyenne will have 6 weeks left in a cast. She will have a new cast put on each week. Her last surgery she had her achilles tendon and all toe tendons lengthened. Stitches come out mid-May. She is starting to put very limited pressure on her foot. Her right foot remains in a brace and is at a perfect 90 degree angle.
Cheyenne is enjoying living on her farm and managing her farm animals. She is still very much a Glee fan and loves to sing at school.
Cheyenne continues to be supportive of others at school that are being bullied. She is always thinking of others and growing up to be such the sweetheart.
Always does she wear her smile even through all of the challenges.......she wears her beautiful smile.
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June 2011
I'm walking, taking one step at a time. THANKS TO EVERYONE FOR YOUR LOVE, PRAYERS, AND SUPPORT.
LOVE,
-Cheyenne Willis
Dustin at the Fashion Show Benefit for Cheyenne
Donations
100% of your donations will go directly to Cheyenne Willis for future medical expenses.
Please send your donations directly to:
Cheyenne Willis
P.O. Box 64
Templeton, CA 93465
Checks can be made out directly to Cheyenne Willis.
